WHITE PAPERS

Research and insights on
rare disease education

Explore our library of white papers covering adult learning theory, physician engagement,
rare disease commercialization, and patient advocacy.

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Adult Learning Theory

How adult learning principles apply to physician education in rare disease — and why traditional approaches fall short.

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Best Practices in Rare Disease Commercialization

Strategies for launching and commercializing rare disease therapies — from market access to physician engagement.

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Content Marketing for Rare Diseases

Why content marketing in rare disease requires a fundamentally different approach — and how to get it right.

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The Education Gap

The gap between rare disease awareness and physician readiness — and what it means for patients waiting on a diagnosis.

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Genetic Testing

The role of genetic testing in rare disease diagnosis — and how physician education can accelerate the path to testing.

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Interactive Education

Why interactive content formats outperform passive education in rare disease — and the data to prove it.

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Nothing About Us Without Us

Patient advocacy and the role of lived experience in shaping rare disease education and research priorities.

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Personal Experience

How personal connections to rare disease shape better physician education — and why it matters for patient outcomes.

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Raising the Baseline

Elevating the baseline of physician knowledge in rare disease — why incremental education compounds into clinical readiness.

Resources
APDS Case Study
Case Study
Driving Genetic Testing and Patient Identification in an Ultra-Rare Disease
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Jazz Case Study
Case Study
Increasing HCP Disease Awareness and Intent-To-Screen by 2X
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APDS Impact Study
Case Study
Boosting HCP Knowledge and Interest of a Rare Disease by 74%
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